January 31, 2011

January 31, 2011 § 1 Comment

Not too much to talk about today. Jackson is only going to the doctor once a week now so no updates there yet. He’s been doing very well at home and is enjoying all of the attention he gets. Shane is coming into town on Wednesday. Jackson and i are both excited to see him. It’s been two weeks! Shane will finally be able to go to a chemo appointment with us too.

Thank you to everyone who got a Team Jackson shirt! If you don’t mind taking a picture of yourself in it and sending it to me that would be great. I want to make a scrap book for Jackson of everyone who has one but I don’t have any pictures yet.

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January 28, 2011

January 28, 2011 § Leave a comment

Wonderful appointment yesterday! All of his blood levels went up and all of his liver enzymes went down! They are finally able to start Jackson on a new medicine as well. They were holding off on it because it can mess with the liver but now his little liver is strong enough to handle it. So all together now I give him 5 meds at home along with an anti nausea and the anti clot med for his PICC.

Chemo went well as expected. The doctors are very pleased with his progress. They also said that it shouldn’t be too difficult to find a bone marrow donor or matching cord blood for him because he is not a mixed race. The transplant will happen for sure if they find him a good match and as long as he is healthy enough to have one.

January 28, 2011

January 28, 2011 § Leave a comment

Wonderful appointment yesterday! All of his blood levels went up and all of his liver enzymes went down! They are finally able to start Jackson on a new medicine as well. They were holding off on it because it can mess with the liver but now his little liver is strong enough to handle it. So all together now I give him 5 meds at home along with an anti nausea and the anti clot med for his PICC.

Chemo went well as expected. The doctors are very pleased with his progress. They also said that it shouldn’t be too difficult to find a bone marrow donor or matching cord blood for him because he is not a mixed race. The transplant will happen for sure if they find him a good match and as long as he is healthy enough to have one.

January 25, 2011

January 25, 2011 § 2 Comments

Jackson had a pretty good appointment yesterday. His blood pressure was finally back to somewhat normal. Like I said in the previous post, his lumbar puncture came back negative for HLH in the spine and brain. He did end up getting another blood transfusion because his hemoglobin was getting a bit low again. But his platelet level was finally above 400! It was 11 in the beginning.

Some amazing people made up some Team Jackson t-shirts as you can see in the previous post. We have lots of them. They are just asking for donations for a shirt. And you have to take a picture of yourself wearing one for his scrap book.

He is now down to one round of chemo a week. He’s doing very well. I am one pleased momma.

January 24, 2011

January 24, 2011 § Leave a comment

Great news today! No HLH in his spine or brain! Just a short post tonight, more tomorrow.

January 24, 2011

January 24, 2011 § Leave a comment

Great news today! No HLH in his spine or brain! Just a short post tonight, more tomorrow.

January 23, 2011

January 23, 2011 § Leave a comment

Jackson has to be at the hospital tomorrow at 8:30am for a blood pressure check. Hopefully it’s getting back to a normal range. Also, hopefully I will find out the results of the lumbar puncture!

Baby J had his 3 month pictures taken today. A HUGE thanks to Scott Saxton for coming over to the house to take them (www.ScottSaxton.com)! He’s really good at what he does. I recommend him for all your photography needs!

Anyways, goodnight. The morning comes too soon.

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